Meet Scott
Hi, I’m Scott!
8 years ago I was diagnosed with Guillain-Barré syndrome (also known as GBS). When I was first diagnosed, I had no idea what GBS was or how long the condition would last. With the right help and treatment along the way, I've been lucky enough to make a full recovery. If you'd like to find out more about my story, please watch the video.
Medicine X Story
Working as a medical doctor, I realised that far too many patients are confused about their diagnoses, their conditions and their treatments. There’s a disconnect between the language that doctors use, and what everyday people understand. This can make you feel incredibly hopeless and anxious at an often very difficult time in your life.
We believe there is a better way. We believe all patients, regardless of age, gender, culture or condition, should have access to medical information they can understand! Everyone should feel informed and empowered, in order to engage with their doctors and be involved in making medical decisions.
This is why MEDICINE X was created.
Dr. Kim Chilman-Blair
Founder, MEDICINE X
About GBS Xplained
Real People
The GBS XPLAINED story is based on a real person – Scott! It reflects his story, his experiences and his advice to others. There have also been lots of people who contributed along the way with their stories and advice. Thanks to everyone who helped create GBS Xplained!
Our Team
The MEDICINE X team are doctors, artists, and creative writers that all work to make sure of one thing – the information is easy to understand. No more medical jargon! Everything is correct and up-to-date!
Experts
Each of the stories we create is different, so there are experts in the field of GBS that have reviewed the story to ensure it is spot on in terms of medical information.
GBS Xperts
Check out the line up of experts that have been involved with GBS Xplained!
Professor Steve Vucic
SENIOR STAFF SPECIALIST IN NEUROLOGY, CLINICAL ACADEMIC AND TRANSLATIONAL RESEARCHER
Dr Karl Ng
Senior Staff Specialist in Neurology and Associate Professor at University of Sydney
Produced in partnership with
The Guillain Barre Foundation of Australia is a registered charity which aims to increase public awareness through education and raising funds for the research & treatment of Guillain Barre Syndrome until a cure is found. The foundations main purpose is to advance health by supporting and improving the quality of life of patients and families, and to be recognised as the Australian resource for GBS.
guillainbarresyndrome.orgThe GBS Association of NSW
The GBS Association of NSW Inc. was formed over 30 years ago by a group of patients and specialists. The associations aim is to support and provide information to GBS/ CIDP patients, their partners, family, friends and healthcare professionals within and beyond the hospital environment.
gbs-cidp-nsw.org.auKindly supported by
Kindly supported by
We are driven by our promise to save lives and improve the quality of life for our patients and their families, because living with a rare disease impacts more than just one person. We offer support programs and activities and we partner with patient advocacy organisations to improve and expand educational and outreach efforts. We also work with government authorities to ensure patients have access to the medicines they need to live life to the fullest.